Hello, My granddaughter, who is now almost two, was diagnosed with Diamond Blackfan Anemia, a disease causing her inability to make red blood cells. It is a life threatening illness and she has transfusions regularly to keep her alive. The families medical bills are staggering and even though they have insurance it is a stressful situation. Can anyone help suggest a grant that is offerred to assist in paying medical bills. Also insurance doesn't cover IVF and genetic testing , a process my daughter has to go through to get a donor match for my granddaughter should she require a bone marrow transplant. Any help is welcome. Thank you, grammarochelle@yahoo.com
